I thought I was starting to feel better…Then I wake up to a new day in pain and sickness. I never having a waking minute of feeling normal. Why do the medications not make me feel better? I’m always having a hard time explaining what I’m going through because my symptoms are constantly changing, waxing and waning with no rhyme or reason. There’s constant uncertainty due to the unpredictability of this disease.
Not knowing how you will feel one day to the next making it almost impossible to make plans. Concerns of driving or going in public due to vision disturbances and dizziness. Fear of food exacerbating symptoms. Worry over weather changes and trying to avoid the sun. Concerns over employment, finances, and never ending medical bills.